Amniotic Band Syndrome (ABS) is a condition in which, for some unknown reason, a rupture occurs in the amniotic sac (i.e. the container of the baby and the amniotic fluid) where fibrous frays (bands) from the rupture entangle the baby and cause damage to the limbs and/or other parts of the body.
Other names for Amniotic Band Syndrome:
Amniotic Rupture Sequence
Amniotic Band Sequence
Below is a list of sites we found useful in learning more about ABS.
A website with a community of people affected by ABS
http://amnioticbandsyndrome.com
A medical paper describing a case of ABS on the head
http://www.ncbi.nlm.nih.gov/pmc/articles/PMC1721025/pdf/v082p00F11.pdf
Another case study of ABS on the head
http://medpro.smiletrain.org/library/images/JCS15-2-185.pdf
Case report of ABS on the head
http://thejns.org/doi/pdf/10.3171/ped.2006.104.5.352
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"Every life no matter how fragile or brief...forever changes the world" We have been forever changed, for the better, and blessed for having Luisa be in our lives. We hope that our experiences with this challenge can bless others' lives as well.
The Reason
This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.
