"Every life no matter how fragile or brief...forever changes the world"
We have been forever changed, for the better, and blessed for having Luisa be in our lives. We hope that our experiences with this challenge can bless others' lives as well.
This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.