The Reason

This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.

About Amniotic Band Syndrome

Amniotic Band Syndrome (ABS) is a condition in which, for some unknown reason, a rupture occurs in the amniotic sac (i.e. the container of the baby and the amniotic fluid) where fibrous frays (bands) from the rupture entangle the baby and cause damage to the limbs and/or other parts of the body.

Other names for Amniotic Band Syndrome:
Amniotic Rupture Sequence
Amniotic Band Sequence

Below is a list of sites we found useful in learning more about ABS.

A website with a community of people affected by ABS

A medical paper describing a case of ABS on the head

Another case study of ABS on the head

Case report of ABS on the head