The Reason

This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.

Tuesday, December 14, 2010


I love being a member of the Church of Jesus Christ of Latter Day Saints. I love having the gospel and knowing the things that I do. I know that this challenge would probably be so unbearable without that knowledge and without the help of the gospel through prayer, fasting, study, priesthood blessings. I am grateful. I am blessed. But its still hard. The start of every day is a challenge. A challenge to be of good cheer. Some days are easier than others. Today is not one of those days. I have not only been really studying the scriptures but the words of our prophet and other church leaders. I have recently gained comfort and peace from reading:

This talk by Elder Neal A. Maxwell called "Enduring Well"

This talk by Sis. Elaine S. Dalton called "Lessons from the Old Testament: Lessons from Ruth and Hannah"

I would recommend both for anyone who is going through any type of difficulty in their life.


  1. Oh Kat,
    I wish I was close to you not only to hug you and support you, but to learn from you. Your friends are right. Although it is a tough trial, what an amazing perspective you have adapted as you take this journey with your family. Through out all of this, she will be yours. You will forever be her mother, and she does know what a blessing that is. Never doubt that.
    You and your family will always be in my prayers and thoughts. I pray that you will have the strength, support, and an open heart to all the teaching that Heavenly Father has in store for you all.

  2. just wanted you to know that i love you!

  3. Kat,
    You are truly a women of God and I thank you for your example and strength. Please know that I am praying for you and your family.

  4. Thank you for your example. Our prayers are with you guys!!

  5. You're one of the strongest women I know! You're amazing! You're in my thoughts and prayers. Please let me know if there's anything I can do for you. Love you!