The Reason

This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.

Saturday, December 18, 2010

Her Name

On that fateful Nov. 30th day when we found out about our baby girl's condition, one of the very first things that my husband and I discussed was her name. We both felt that she needed a name right away and it needed to be a special name. The name Luisa is one that we had picked out for our first girl since before our first boy was born. Luisa is my Mom's name, and she is named after her dad, Luis. They are both very special people. But the thing that really sealed the deal for me was the meaning. Luisa means "famous warrior". I thought that was very fitting for our precious daughter. We felt that we needed to make her a part of the family as soon as possible. So we refer to her only as Luisa, we pray for her by name, she has her own Christmas stocking and advent calendar. Although my other two children are very young, my 3 year old has caught on and talks about her and refers to her as "baby Luisa". Hearing him do it really makes it official, she IS part of the family.

I was talking to a woman that knows of our situation and she was concerned. And in her well meaning concern she had said, " Well, can't they just take IT out of you?" I was really taken back by her comment. I ended the conversation politely, but thought to myself, my baby is not an IT. My baby is not just a fetus. My baby IS alive and a life, my baby IS a human being, My baby IS a she, a daughter, My daughter, Heavenly Father's precious daughter, my baby IS our sweet baby Luisa. No, Luisa is not an IT. Although, given her condition, terminating the pregnancy was an option that the doctor touched upon ( and he just mentioned it, but did not push for it at all, which I really appreciated), how could I when she is all of those things. I have read on other blogs of mothers who have had babies diagnosed with fatal conditions and have decided to allow the baby to live for as long as possible, instead of terminating the pregnancy. And they have all stated that the reason why is love. They love their baby unconditionally, with or with out defects, with the same love that our Heavenly Father does. Just as I love my sweet baby Luisa.


  1. I am so sorry that someone would say such a thing to you! That really makes me angry for you! Luisa is real, she exists because our heavenly father wants her to. She is no accident or mistake. You will more than likely hear all kinds of things in the months to come. Just love baby Luisa and know that she is part of you and your husband and beautiful! You will hold heaven in your arms when she is born and will know the peace that passes all understanding. Put your thick skin on and let those types of comments bounce off because they come from ingorance. Praying!

  2. You are an inspring mom to be. Sharing what must be painful information with the blog community. What a wonderful tool the internet is allowing you to find people in similar situations that can provide support. I will pray for you and your family that your beautiful baby girl Luisa will arrive as safely as her condition will allow.