With this experience I have done quite a bit of searching on all sorts of levels. I knew I wanted to record this experience, and as I was starting this blog I just started feeling frustrated, and getting kind of mad at the stupid amniotic bands that are so destructive, and this ABS that is so mysterious as well as the Acrania. It's silly, but I was mad at those things. In my frustration I googled, "What is Acrania", and what came up in the search was this: a blog set up as a type of memorial to a sweet little girl who was given the same diagnosis as my sweet little Luisa. I cried and cried, for many reasons. But, one of those was how these wonderful parents, this inspiring mother traded her ashes for beauty. After reading about sweet baby Karinne, and her equally sweet mother Kara, I felt so comforted and reassured that this experience can and will be a beautiful experience for me, and Luisa, and our family, and anyone else who wishes to join us. I will be forever grateful for that google search.
The connection I made with Kara brought me to another blog that is also so, SO inspiring, and moving. It is the true story of beloved Vitoria from Brazil and her amazing parents. Vitoria, while in her mother's womb, was also given the fatal prognosis due to Acrania. But, this sweet child lived! And she still does today at 11 months old. I am so moved and inspired by her parents joy and gratitude at the miracle that has happened in their lives. Another amazing example of trading the ashes of life for something beautiful beyond compare.