The Reason

This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.

Saturday, May 14, 2011

Doing Well

Ever since our trip to Utah and visit to Luisa's grave and recognizing that I needed to put my energy amongst the living, I have noticed a change. I feel a little lighter than I did before, if that makes sense. Not saying that I am without bad days, because I still have bad days, but the grieving is not as painful. Mother's Day was nice, relaxing, and I thoroughly enjoyed being a Mom this day, cherishing little round faces smudged with chocolate all the more then I have before. I hope and pray that others that grieve can feel peace and find solace and learn and grow through the process.


  1. I'm so glad that you have found this peace amidst the bad days and hours.

  2. I am glad to read that you feel lighter than before. It makes sense to me!!