The Reason

This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.

Tuesday, June 7, 2011


Tonight I read back from the beginning of this blog. I cried for that Mother, and find it hard to believe that that Mother is me. Looking back, I cannot believe what I've been through. Going through and reading what I had wrote while in the thick of things brought back to me how truly painful that time was. I am so glad that I remembered to mention the blessings, too. Such as the peace and love that I was blessed to have and the kindness and service that was rendered to me. Because the pain is very distinct in those entries. At least for me. Don't know if it was a good idea to go back and do that, but it's done. I am so grateful to people, friends, old and new who reached out with words of love and support. I will never forget you and hope that I can give back in that way many times throughout my life. I truly hope that Lord will bless you.


  1. I have gone back and read old entries too. It's amazing to me now to read the words that I wrote. I can't believe all that we have been through!

  2. I too do this....I wonder where some of my words came from, and then I know it was Christ. It still amazes me that I have made so many blog friends who have hurt, and feel the way I have and often do. I know that this is God's way of letting us ALL help each other throughout this journey.

  3. When you're in the middle of grief like that, it's hard to believe you'll ever escape it. And then when you do, remembering the pain is difficult and raw. I'm so glad to hear you have a strong support network and that you've gotten to a place where it doesn't hurt quite so much. Big hug!