Brought such joy and love so bright
Filling her parent's hearts with delight
There's not doubt where this brilliant soul will go.
Not restrained to this earth below.
To perfection with the Creator above,
With some tears we send our wishes and love
But with a cheer we hope to see
You in Heaven with our Savior from Galillee.
-written by Uncle Daniel Bowman ( my brother ), December 29, 2010
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"Every life no matter how fragile or brief...forever changes the world" We have been forever changed, for the better, and blessed for having Luisa be in our lives. We hope that our experiences with this challenge can bless others' lives as well.
The Reason
This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.
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