The Reason

This blog was started as a way for me to record our, my daughter Luisa and our family's, journey with Amniotic Band Syndrome that presented itself on the head of our sweet daughter. And has turned into a journey of dealing with a fatal prognosis, and the very premature death of our sweet baby. My great hope is that we might be able to help at least someone, if not more, by sharing this experience.

Saturday, January 15, 2011


Two weeks ago today I delivered my sweet baby Luisa's still body. Last night as I was driving to Fry's Electronics ( my husband's favorite store ) with our two little boys I had an intense memory of being at the hospital and delivering my child. It was so intense that not only did I feel those emotions so intensely that I started to cry, but I also could almost smell the hospital room. And it didn't smell bad, but that is just how strong the memory was. It really caught me off guard. So today I decided to do something to kind of commemorate the day, in a way. I bought a bouquet of daisies, white pom daisies. I love them. I had a bouquet of white pom daisies and red roses for my wedding. I bought a beautiful arrangement of white pom daisies, spray pink baby roses and evergreen for Luisa's grave. And we had everyone at the burial service put a single white daisy on her casket. I remember standing in front, shivering, feet frozen, and taking a deep breath of that lovely daisy scent, and it actually made me smile, right there at my sweet Luisa's burial service. That is how much I love daisies. So today I bought some daisies and once again they made me smile.


  1. It never fails to amaze me how vividly smells of that day or days surrounding Eli's birth and death can affect me. I was walking through Wal-mart the other night and a smell hit me that took me right back to one of those moments. I think I went through the rest of my shopping in a daze. I love daisies also! They are so beautiful!

  2. You never know when the memories will sneak up on you and the emotions will flood. I still have my moments and it's been almost a year. Hang in there!